Scottish Paediatric Surveillance Unit






Death of Child with Epilepsy

Project Description and Aims

  1. To determine rate of death in children with epilepsy
  2. To determine causes of death in children with epilepsy
  3. To determine rate of Sudden Unexplained Death in Epilepsy in children

Case definition

Children, aged 0 -16 years, who die from any cause, who have epilepsy

Exclusion Criteria

Neonates who die in 1st 2 weeks of life with hypoxic ischaemic encephalopathy

Reporting instructions:

Please report any child over the age of 2 weeks and under 17 years of age that die from any cause and who have epilepsy as a diagnosis/additional diagnosis

Lead Clinician

Dr Ailsa McLellan